Wednesday, June 25, 2008

Train off the Track

For months we've been chugging along thinking everything was ok with Kaylee. We sat down with the therapist today to track and measure Kaylee's progress in comparison to typical babies and it turns out that her gross motor is at about an 8-9 month level. Cognitive and Fine Motor are on target, but Gross is off. It seems like the gap is getting larger too. Before she was only a month or two behind, now it's three, almost four. I have been a little concerned with her lack of crawling. Kay's first birthday is just three weeks away, and even Javi (autism), our slowest to develop with everything has Kay beat with the crawling. I know that crawling is not considered for development, but almost everything she does is still wobbly, like a 6-9 month old baby would be. I called Dr. Neuro to make an appointment to see what he has to say about it. The therapist is concerned about her low tone. She is concerned that the reason she isn't crawling, cruising or walking is because of low tone. So though we had felt that she has made so much progress, it turns out that our developmental choo choo has been derailed. She has made progress, but only really in Fine and Cognitive in the last couple months.

I am a disappointed to think that we may have to go through another round of testing and hospital stays to determine if there is another underlying problem. I know that we are not alone there, since a couple of you that follow this blog are also going through testing right now. It just seems like if it's not one thing, it's another. I feel like it's a constant balancing act with the kids. It's like, ok, Javi's doing ok this week, now Ethan is having trouble with this, now Kay is having this issue, now back to Javi. If it were normal everyday issues, fine, but these are big ones. Such as Javi's issues with focus, concentration, flapping and his ever increasing needs for sensory input. He keeps hurting the other kids because he tries to give them "sensory time". Ethan's issues with his gross motor, last week it seemed like he fell down every 10 steps he took. Now Kaylee, who I thought was doing much better. I know that's life, this is the hand we were dealt and we are doing our best to play it and appreciate what we have but, sometimes it's just overwhelming. We'll have to hang in there and see what they say when we see Dr. Neuro in August.

2 comments:

baby trevor's mommy said...

Oh sweetie...I'm so sorry. Each & every time I have gotten *news* it always knocks the wind out of me.

I wish our kids didn't have to be challenged like this. Even though I think we both believe it'll make us all stronger...it's still sad...especially on the mommies.

BUT...that said...you are an amazing mom! Kay has the best defense of her side!

xoxoxo...danielle

~Mama Skates~ said...

kudos to u and danielle for all the testing & worry u both go thru - i don't know how u do it! xoxoxo & prayers coming ur way - i hope the testing brings some answers for u